Thursday, 14 May 2015

Life Right Now

Life has been really crazy over the last few months. I mean really crazy. Ever since I spent a nightmare week in hospital in Bali I've been seeing all kinds of doctors and trying to figure out what is going on with me. 

I had a pretty scary MRI scan, not the results - just the experience! I spent an hour in the scanner and my tattoos heated up which was a pretty odd sensation. Luckily nothing was wrong with my brain scan and my neurologist has now diagnosed me with 'Familial Hemiplegic Migraine' which is not that much fun I can assure you! I previously had never heard of this condition so had no idea there was even such a thing! It's not just bad headaches - it affects me almost all of the time at the moment and when I do get a bad attack it looks like I've had a stroke.

I'm still seeing doctors to figure out what the whole picture is as its great I'm getting somewhere but that doesn't explain everything. The next step is seeing a rheumatologist I think which will hopefully happen soon!

In the meantime I'm trying out a crazy device called Cefaly which is supposed to help reduce migraine frequency. It's that crazy Star Trek type device I'm wearing in the picture! It's pretty much like a tens machine for your brain and since tens helped me in labour, I thought I'd give it a shot and see how it goes. I've also cut out gluten to see if that helps any, I know it has helped others who suffer from complicated migraine so anything is worth a shot!

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